Scars in the Sunlight

With Shelly Vaughn


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A few random things:

I’m still waiting to hear from the radiation oncologist to set up my radiation schedule. I’m not looking forward to it, but I’m also anxious to get it over with.

I’m back to work full time; and so thankful that I work with amazing people who have made the transition as good as it can be.

This picture shows how happy I am to have my port out!! My arm is still just a little swollen and tender, but it’ll feel so good once it’s back to normal.

It’s been really nice outside so I’ve been soaking in the beautiful weather, knowing it won’t last much longer. If you’re reading this and it’s nice where you are- you should really get outside and enjoy it. Even just a walk around the block will be worth it. If you’re healthy enough to go do something- do it! 


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Deportation Day

“Deportation Day”- it happened today and the port is OUT! I’m so happy that it’s out… and that they let me keep it! If you look at the picture- the purple part was in my arm where they injected needles for every chemo treatment (and any other time I would’ve otherwise needed an IV.) The white part is the catheter that was thread through my vein- up and around my arm then the tip rested next to my heart. The numbness from the procedure is wearing off and my arm is pretty painful so I’m done for the night. Thanks for sharing in my excitement to get this out today. 

 


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No More Port!

Great news- I am getting my port taken out on Friday!! This Friday! Two days from now!! I’m so excited (if you can’t tell). I had an appointment scheduled for later in the month, but they called today to bump it up earlier. I know that treatment really isn’t done until radiation. But this port was so symbolic of the beginning of treatment… and the removal of it is symbolic that the end is near. That thing was my lifeline- I hate it and I love it all at once. I’m so glad to get it out of my body. OUT!! GONE!! Along with the cancer!
(Oh- and my return to work went well today. I had an appointment in the morning so it was a shorter day than usual. It was a nice way to ease back into things. And it was really great seeing my co-workers. Seeing them meant getting hugs from friends- which was actually really energizing and uplifting. I am thankful.)


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Healing and Work

I am continuing to heal well from surgery while doing PT to help with range of motion of my arm and lymphatic massage (to prevent lymphedema). This last weekend was especially pleasant because I was feeling well and we were able to get out and do some activities that felt “summer-y”- a day at Hale Farm, Stow Summer festival, and a picnic with friends. I love being able to enjoy times like these and so thankful for beautiful weather to do it. Tomorrow is a big day- I return to work after being off during this medical leave. I worked through chemo, so this shouldn’t seem too bad. But for some reason, I’m feeling nervous about it. I’m going back to do work that I love and be around people who are very supportive… it’s really the best case scenario. I guess I’m just nervous about the unknown- how will I feel by the end of the day? will I have the energy to do my job well? how will my radiation schedule fit into my work/home life schedule? I guess it’s the same as every step I’ve taken so far- I don’t know what it will look like, but I know I’ll be ok. But if you feel like saying a prayer tonight it would be appreciated.
Thanks, everyone.


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Deep Waters

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The girls went back to school today, starting 2nd and 4th grade this year. As the beginning of school marks the end of their summer break, I reflect back on what this summer has been like for them. I was so concerned that my issues would hinder their fun or make their memories of summer 2017 boring or miserable. Thanks to all of you who helped keep them entertained, and brought meals to us so that we could have more “down time” with them, I would say we collectively made their summer break pretty fun for them. It’s part of why I love this amazing group of people- not just holding space with me through this, but being part of the community/family keeping my girls playful and innocent.

There was one change with the girls this summer that I got to enjoy just recently. They have been to several big swimming pools this summer and had been telling me how well they can both swim now. It wasn’t until last week that I felt well enough to get out of the house with them and watch them swim at a friend’s house. They weren’t kidding. They’re swimming in deep water; jumping in without fear; and doing the handstands, flips, and underwater tea parties that every young girl should spend hours doing. It made me remember doing all of the same things with my sister, cousins, and friends every summer. It also made me think back to several years ago when we were members of Waterworks pool. The girls were both much younger and leery of the water. They would stand on the edge and hesitate to jump in the pool into my arms as I waited in the water. I knew they were safe no matter what, but they couldn’t feel it until they were actually in the water with arms around my neck and feet tucked around my waist feeling safe and secure again… and able to smile.

I can relate to that now in a different way. A cancer diagnosis suddenly threw me into water that I wasn’t ready for. It was so deep and frightening. My head barely stayed above the water at times and for a while I panicked- floundering around, reaching for anything around me to make me feel safe- just wishing I could be in a different place where my feet could safely touch the ground. But when I calmed enough, I could feel God’s arms right there. He was standing in the pool just waiting for me to realize He’s there to keep me safe in His embrace. To hold me in the deep water when I cannot stand on my own. So I feel Him now. I know He’s there. And I feel almost safe. Not enough that I’ve taken a breath and allowed myself to fully relax in His arms. (I don’t know when that will happen as I’ve heard from several survivors that the fear of recurrence is strong for a while.) But I feel like I’m getting so much closer to that now that I have the “all clear” from pathology. Honestly, I’d still like to be out of the pool watching from a chaise lounge as I sit poolside eating grapes in the warmth of summer. But you know what, I’m learning that I don’t get to choose where I want to be. But I can choose to trust that God’s got me no matter where I end up. 💕

“…You call me out upon the waters
The great unknown where feet may fail
And there I find You in the mystery
In oceans deep
My faith will stand
And I will call upon Your name
And keep my eyes above the waves
When oceans rise, my soul will rest in Your embrace
For I am Yours and You are mine…”
– Oceans (Hillsong United)


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“It’s all gone”

“It’s all gone.” Those exact words came out of the surgeon’s mouth today when I asked him if he can definitely say if there’s any cancer left. I know he hinted at it during the last appointment, and I knew that the pathology report was suggesting that, but he never actually said the words. And I was scared to even ask because every other person I know with cancer doesn’t/hasn’t gotten a direct response like that. But I asked, and he said “It’s all gone”, and for the first time I actually let the joy and relief that comes with those words enter my being and feel it from the inside. I don’t know how to explain it. Like I knew it intellectually at the last appointment, but today I FEEL it… I FEEL free of cancer and he confirmed that it is gone!!! I cried, the nurses cried, and they sent me home with cupcakes.   It’s also easier to react to such good news now that I’m further in my recovery from surgery.

Along those lines, I’m continuing to recover well. My incisions are healing incredibly well. The surgeon was impressed and said, “I’ll do surgery on you any day.” The infected drain site is finally starting to look better, though is still the most uncomfortable part of this.

I started physical therapy this week and was totally impressed. The PT talked about things we’ll do to prevent lymphedema (swelling in the arm that happens when lymph nodes are removed and worsens with radiation.) She’ll also help me work on increasing range of motion with my right arm. And will help with reducing scar tissue and increasing skin movement around the incision sites. She was extremely knowledgeable about post-mastectomy needs and I’m looking forward to working through this with her. It feels good to know I can now be a little more active in my recovery instead of passively enduring stuff that is done to me.

(I still have radiation that will start in a few weeks… and I’ll keep you all posted on that as it gets closer. The dr said that radiation helps reduce the long term chance of localized recurrence. As much as I wish this was totally done, I’m willing to do another step if it means preventing this in the future.)

It’s been a good week and an especially good Friday! Also, I’m writing this as I watch the girls play “Just Dance”… that’ll put anyone in an amazing mood!   Love, Love!


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Recovery

Yesterday was August 1st… mark that in your calendars as one of the best appointments so far!!! My prayers for healing have been heard and answered. First of all, I got my drains out which was a huge relief. And the surgeon said that’s the fastest he has ever taken them out of someone (just 6 days).

We knew during surgery that there were cancer cells found in one of the sentinel lymph nodes (which is why they removed a whole cluster of them after that). I still don’t know how many more were removed, but he said there were only “isolated tumor cells” in one of them, which is technically still considered negative. No other lymph nodes had any sign of cancer. He said it was because the chemo was so effective in killing the cancer in the lymph nodes. And the original tumor had shrunk to 1.2 cm. All margins are clear, which means there were no cancer cells near any of the edges of what was removed.

With the mastectomy and lymph node removal, they basically got all the cancer OUT of me!!!! It feels so good to know it’s gone!! I’m healing well, the incisions look good, and I have another follow up next week. I’m in a lot of pain today from where the drains came out… my tissue had already started adhering to the drains, so it ripped a little when he removed the drains. I’m taking pain meds to manage that pain for now and hopefully it will be better in a few days.

I will still do radiation as is protocol for treatment. That will happen in about 5 weeks when I’m healed from this. It’s the last big step for this time period (as reconstruction will happen next year).

My mom was here to help a ton last week. And we’ve had a lot of help with the girls and visitors to the hospital (thanks, Lisa GonidakisCindy Hastings WinterBrittany ArmstrongAmber Pierce NormanHannah SpringerKeely A Smith-JividenCinnamon Leonard, Becky Kearns, and Doug Gates.) I also had my own personal nurse today to help with changing my wound dressings (Kelly Dawn Hobbs) . It’s times like these I realize how wonderfully God has paved the way ahead of me… all the people He has placed in my life and ready to help when I need it. Thanks for all the prayers… please keep them coming for comfort as I continue to heal and pray that the pain subsides. Thanks everyone!


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Moving Forward

Sorry it’s taken a while to update everyone. I do have some medical updates and the next steps of my treatment plan in place. First (the best news)- I got results from my MRI and it looks clear!! They cannot see any part of the original tumor and the lymph nodes look normal. So all of that horrible poison did its job!!

Moving forward- the date for surgery will be on July 26th. I have very mixed feelings about it, but confident that this is the best thing for me. About 6 weeks after surgery will be radiation, which will last 6 weeks. And then I’ll have phase two of surgery in 6-12 months, depending on how I’m healing from everything. It’s a longer, more complicated plan than I was hoping for. But it’s what needs to be done. All 3 of the doctors working with me (surgeon, plastic surgeon, and radiation oncologist) agree that this is the best plan to prevent recurrence, and I have a lot of years ahead of me to keep this away.

Physically, I’m feeling better each day without chemo. The mouth sores are gone and I’m able to eat most things. I have more energy than I’ve had in a while. My only complaints now would be that my fingertips (and a small part of my toes) are still numb and my fingernails are falling off. I’m also pretty sore every morning and my legs feel very tight. It feels like I worked out hard the night before, even though I haven’t. I’m guessing it’s just my body getting used to doing regular, everyday things. So if you’re looking for specific things to pray about, those would be good ones. All in all, nothing even close to how I was feeling the last few months, and that’s a wonderful thing!

I hope you’re all enjoying the warmth of the sun and the sound of the birds as much as I am. If you haven’t yet, take a moment tomorrow to soak it in… it’s a beautiful world out there!


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New Day

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It’s the first Saturday in months that I’ve woken up without the expectation of chemo side effects… and what a wonderful feeling! I still have some lasting effects that will take some time to resolve. It’ll take a while to build up muscle and energy again, but I’m already noticing a difference. And, as many of you noticed, I updated the cover photo for this group. Of course, it was intentional, because the fog has lifted and I needed something more representative of this next phase of this experience. The photo is a beautiful sunrise taken at Dolly Sods when Rob went backpacking there. There’s still a whole day ahead and what unfolds is still yet to be known. But it sure is beautiful to see the sun and know that the warmth and light will surely be in the future.


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Suffering

I suppose it would be natural for anyone going through a really difficult trial to wonder why it’s happening and to think about others who have gone through similar situations. These thoughts bring me to part 2 of my post from last week- to try and put into words some ideas about faith and suffering. I just need to preface this by saying that it is very rudimentary, but it’s therapeutic for me to write it. Besides, questioning/wondering is healthy in developing your own sense of purpose… right.
So why. Why does cancer even exist? Why is this so hard? Why do humans go through tragedy and suffering. These are big questions with bigger answers that I’m not going to be able to answer. But I’ve had a glimpse into this in a way lately that I haven’t had before. In simplest form- after time spent in suffering (on any level), you gain a better appreciation for the good things in life. Your perspective shifts. What used to seem mundane or unremarkable now brings deep joy and appreciation. These aren’t new, huge events around you. They are things around that might have been there all along, but in our fast-paced, technology-filled day-to-day it’s so easy to overlook them. That’s how it’s been with my experience through cancer, and I’m guessing with many other hardships that people go through. I don’t know if it’s the reason we go through them, but it is a benefit of going through them. I’ve never been so appreciative of sunshine, and short walks outside, of sitting with my eyes closed listening to birds, the delicious smells of food (that I couldn’t eat), warm hoodies, energy to get up the steps, flowers, the sound of rainstorms, warm baths, fluffy clouds viewed through a skylight, sitting by loved ones without saying a word, children giggling, wind on my scalp, hugs… lots of great hugs. I am so appreciative of these things lately. And I pray that I don’t lose this perspective of the simple beauty around me even as I come out of (and hopefully far from) this difficult experience.

Here’s the best analogy I can think of: Your bathroom light. it’s an average light that functions fine when you flip the switch on. For the most part, you probably don’t think twice about it. But it’s a different story in the middle of the night. You wake in the middle of the night and need to use the bathroom. After extended time in the dark, you fumble down the hall and reach to turn that switch on (just like you did earlier that day). But now the sensory experience of the light can be overwhelming. It’s the same light and wattage that your eyes perceived during the day. But when you’ve been in the dark for so long, that same light seems so much brighter. We suddenly have a shift in perspective that makes the light seem brighter… the light doesn’t change, but we do. Our suffering is the time in the dark. And after experiencing it, even a small amount of light seems so bright to us. So I encourage everyone this week to “look for the overlooked”- find those things that have potential to be bright lights. They may seem dim now because you’re not in the dark… but hopefully you can appreciate them anyway.

One other thought about suffering: I remember a quote from a show that said “someday this pain will be useful to you”. I believe that my pain has already been useful because of how it’s changed my perspective. But also in that it will allow me to help the next person- the next friend in need or person to get a cancer diagnosis. The next person who I may become close with because we can relate to each other through similar suffering. Some of my greatest comfort since January has been words of encouragement from other survivors. I hope I can be a source of comfort to others moving forward. Because maybe now, that is part of my purpose. Unexpected and undesired- but if I can bless someone in a fraction of the way I’ve been blessed through this, as a person more refined by this fire, then I’m all in. (see that… I even tied in a little Cleveland Cavaliers humor for you all.)