Scars in the Sunlight

With Shelly Vaughn


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Camp Koru

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I’m writing this on the plane, flying home from an amazing experience at Camp Koru in Maui. I should be sleeping because when we land today it’ll be tomorrow at home.  But I’m still riding the wave of excitement so I wanted to share it.

I flew alone to get to camp- to meet 15 strangers who have or had cancer, along with 5 counselors (3 of whom also had cancer.)  It was out of my comfort zone to do something so big, but be so alone. Turns out this camp was exactly what I needed at exactly the right time.

We spent 5 days in Maui.  4 of them were filled with surfing and paddleboarding lessons.  There’s something about the ocean that spurs so many metaphors- changing tides, ocean waves that have traveled so far to meet you in a moment, persevering through rough waters near shore to get to calmer waters beyond it, waiting patiently out in the water for the perfect wave to come- knowing it’s worth the wait.  See- SO many metaphors. They were swirling in my head all week.

The challenge of learning to surf meant that my body got beat up quite a bit.  The rocks scratched our legs so much that when we would get out of the water the “camp doc” had us line up for the “peroxide shower”… where she squirted peroxide on everyone’s legs.  Paddling out in the ocean made our arms so sore that it felt nearly impossible at times (especially for this body that doesn’t have lat muscles anymore). My knee was so banged up and bruised that it swelled up for most of the time there. And it was worth Every. Single. Ache.  Because in the end, I was standing on a surfboard in Maui, riding waves with some of the most meaningful new friends in my life.

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What was most beautiful about camp was the natural comradery of being surrounded by other survivors.  The ease at which “cancer talk” happened so organically in conversation was surprising to me.  A group conversation would easily flow from learning each other’s favorite hobbies to discussion about how we each handled bathroom accidents during chemo.  And instead of the typical response of “awe- I can’t believe you had to deal with that”, it was laughter at everyone being able to relate; and seeing who had the most creative solution to that particular issue.  We would talk about the beautiful ocean water and then seamlessly transition to which remedies work best for long-term side effects. It felt so natural and easy to talk to these people who knew me for such a short time, but already understood me so much.

Prayer conversation:

On Tuesday night, I had an amazing conversation with a girl, “Huck,” who would soon become one my most important friends.  She is younger than me, married without children, living with chronic thyroid cancer. I had noticed the first day at camp that her medicine took up a large portion of her packed items.  At that evening’s campfire talk, she mentioned that her faith helps her get through hard times. So I knew I wanted to ask her some deeper questions about faith when we were alone. I’m so glad that I did.

Why I have not heard these words before is beyond me.  Maybe I haven’t been asking my questions clearly enough. Maybe people have told me this and I just haven’t “heard” it until now.  Or maybe no one has given me such a clear answer before. I’ll try to explain…

I had watched the movie “Breakthrough” on the plane ride to Maui. It was a heartwarming movie, but I got hung up on the fact that if we credit God for answering prayers when they are answered the way we want, how do we explain and (maybe more importantly) find peace when prayers are not answered the way we hope.

In previous conversations and readings, when I’ve asked why prayers aren’t answered, it inevitably leads to a response that “prayers are answered, just not always the way we expect.” Then THAT always leads to the same dead end in my mind of why we bother asking for anything if it’s all going to work out according to God’s will anyway. I have struggled with understanding the “why bother” side of praying for specific things. (Side note: I do see the value of prayer drawing us in closer relationship with Him, but that’s not where my hang up has been.) Remember, I’ve lost two very close people to cancer, so it’s hard for me to accept the “unanswered prayer” response. I’ve also, obviously, been healed from the disease which complicates my brain’s attempt to process all of this.

That’s when Huck’s wisdom hit so hard that I was speechless.  This is a woman who has chronic cancer, 8 years since diagnosis, unable to have children of her own.  She shared that she prayed to be cured for several years. And for a while assumed it would happen- in God’s time.  Then she realized what would bring her peace… and has brought me peace as well. She prays for God to guide her heart to have desires that align with His will.  God is more concerned with our spiritual healing than our physical healing. That spiritual healing comes when we are at peace. And that peace comes when we are desiring what He is planning anyway.  Mic drop.

Ok, I’m being dramatic. But it really did hit me that hard because it made so much sense. I feel like I finally understand how to navigate the confusing maze of “why even pray” and “God’s will is always going to happen anyway”.  I went to bed Tuesday night with such a sense of peace and understanding. Pray for our desires to align with His will. Then we have peace because whatever happens is what our hearts are ready for.

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Healing day:

Wednesday, in the middle of our week, turned out to be one of the most special days of my life.  Our counselors surprised us with a trip to do outrigger canoeing with native Hawaiians. The two natives who led our group were elders who are held in high regard in Maui.  They showed us how to paddle the outrigger canoe as a team, while singing chants in Hawaiian along the way. I was enjoying the songs and felt very connected to my team- out on the shores of Maui singing songs and gliding through the water because we were a team of warriors.  Suddenly the elder changed the words of the song we were singing to the English version. You know what it was?… “This is the Day that the Lord Has Made.” A favorite hymn. I couldn’t believe I was chanting a worship song on the ocean and didn’t even know it until then. A while later we were doing a different chant in Hawaiian, and he again eventually switched to the English translation- it was “Let the Sun Shine In.”  I’ve been listening to Frente’s version of that song at least once a week for the last 3 months on the drive into work in the mornings.

Maui Elder

So we finally navigated around a small rock wall near the shoreline to a cove.  The elder explained that the purpose of the rock wall was to help catch fish and food for the island.  Our purpose there was help build up the wall- collectively pick up some of the rocks that naturally got knocked over or worn away and pile them back onto the wall.  This would help the natives for catching food for their families. I felt honored to be invited to help build something that has been so important to these people for centuries.

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After we worked on the wall for a bit, they asked us to circle up in the shallow water.  The elders stood in the middle, filled a coconut with water, and sang unfamiliar words that wove themselves into my soul, settling deep in a comfortable spot inside my heart.  I closed my eyes, tears rolling down my cheeks as their words moved me. They walked around to each of us, blessing each one individually as he looked into our eyes, dipped a lei into the water and blessed me with it on my head, shoulders, and legs.  It is impossible to put into words what happened and how it made me feel. But I truly felt like I was healed- physically and spiritually. I had my answer about prayer life from Huck the night before. And now had this incredible feeling of being blessed and healed in the waters of Maui, through words of a different language that meant the world to me.

Side note: As I talked to Huck afterward about how moving that ceremony was, she said that she recognized “Jesus Christ” being said several times in the elders’ chants and songs.  So in the middle of this crazy emotional meaningful jumble of beautiful words, they were actually praying to Jesus.

So I walk away from this week feeling healed- spiritually and physically.  I sure hope the physical healing lasts for another 40 years. But I know that regardless, the spiritual healing is what is more important.  That comes from the peace of understanding I can pray for my desires in life to align with His will. If I desire what is already part of His plan, I really can’t go wrong… am I right?

Final thoughts:

Since my diagnosis in 2017, I have thanked God for the medicine to kill cancer and for surgeons to “fix” me. I have been in awe at my body’s ability to heal.  But I have not thanked Him for this body that betrayed me. Honestly, I’ve been bitter toward it for two and half years. This morning- my last morning waking up on a bed outside on a Maui beach to a beautiful sunrise- I closed my eyes and, without hesitation, prayed thanks for this body.  The moment I did, I was brought to tears realizing that I wasn’t bitter anymore. Which meant that for the first time since 2017, I felt truly healed- inside and out; spiritually and physically; my heart and my soul…. Mahalo, Maui.

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Thirty-Eight

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38… I made it to 38!! And I imagine that every year I grow older will be just as exciting. After facing mortality at a young age, I can appreciate how special each birthday is… and I don’t think I’ll ever be ashamed to shout my age from the rooftops. I’m cancer free and happy to say goodbye to 37, which was not my favorite year. I did not expect to spend this day in the hospital… I was actually looking forward to having a birthday feeling normal again. Guess that will have to be postponed until next year.

Though last night was peaceful for me, it wasn’t restful. (And the giant bags under my eyes are proof of that.) I woke up to my birthday morning accurately feeling like a girl who laid in bed most of the night without much sleep. But as soon as I finished breakfast and got a shower, visitors started arriving and it was amazing. Michael Clay Donnell, Keely A Smith-Jividen, Alli Herren, Becky Lockhart Kearns, Aubree Uhler, Barb Kline, Dorothy M Caldwell, Tina Heiberg, Susan Carpenter, Cinnamon Leonard… thank you for taking time out of your day to visit. Spending time with friends, especially having conversations that made me smile and laugh, was exactly what I needed to make the time pass quickly and make me forget how tired I was. I feel so much better than yesterday. My side is still painful, but I don’t feel “sick” today with fever and nausea like I felt the last two days. I know the antibiotics are working. When my sister asked what I got for my birthday, I jokingly replied “cellulitis”. But you know what Amy O’Shea reminded me of- I actually got the gift of healing. God is healing this infection today… and that’s really the best thing I could ask for.

A special shout out to thank my brother for sending a cookie cake and to everyone who sent messages and phone calls to wish me a happy birthday. The research nurse here brought me a cake, too. And when the woman in charge of cafeteria orders heard it was my birthday she brought me a piece of cake with a candle in it (though we couldn’t light it). My coworkers sent a beautiful bouquet of flowers and I got cool plants from Alli Herren, Susan Carpenter and Rob Vaughn. I have a windowsill and a heart full of love tonight. Though this isn’t where I would choose to be on a birthday, it turned out to be kind of wonderful.

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So much food… so much love

We have had many local friends show love to us by providing meals and gift cards. (Someday I will eventually get caught up on “thank you” cards for all of you.) The time and money that we saved is immeasurable. There were many days that I felt too sick or tired to even think of food for the family. And there were other days that I felt pretty good, but because meals were coming I could spend time enjoying other things (like time relaxing or going somewhere as a family) instead of worrying about what to make for dinner that night. We will forever be grateful for everyone’s help with this. Our dear friend Jeanine Muller organized the “Meal Train” and kept it going for us when we needed it. This Tuesday’s meal from Jen Wedo included a beautiful bouquet of roses to mark the end of treatment. And tonight’s meal (the last on the schedule probably until reconstruction in the summer) was brought by Katie Ruhl and was surprisingly celebratory! Thank you to Katie for recognizing that this was worth celebrating- with sparkling grape juice to toast with the girls, a full spread of snacks and dinner, and delicious food to eat together as a family. We feel very blessed to have been shown love and fed by everyone so well over the last 10 months- our bellys and hearts are full. 

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Thankful For Friends

Shout out to our amazing friend/neighbor/babysitter, Jessica Eckhart. She loves our girls so well and has always picked up where I slack in the area of arts and crafts. She has been tremendously helpful to us since January. And now that the weather has warmed up, she is also doing things like taking the girls to Brandywine Falls, the zoo, and other outdoor adventures. I love having friends that are able to do the things with my kids that I don’t have energy for these days.


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Another One Down & Thank You

Amber Pierce Norman hung out with me for today’s treatment. I wish it was at a different place and for a different reason, but at least we had some quiet time to chat. Still pushing through these treatments. (I’m so tired of them!!)
Thanks to everyone who has helped us recently with dinners, cleaning, carpooling, having the girls over, etc. This is a busy time of year, and I can’t just pause everyone’s life until I feel better. Boy, wouldn’t that be nice? So I appreciate the amazing support from local people. And of course, the cards and messages from everyone. 5 more left!!

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Thank You

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Today, I feel so loved and supported that it’s almost surreal. A group of amazing friends made these for me, and there are several more that didn’t fit in the picture. (Many of these girls were the same ones who planted the flowers at our house yesterday.) These words of encouragement and love will fill my soul every time I read them. I’m reminded that another blessing that comes through trials, is the realization that you’re surrounded by amazing friends every step of a difficult path. Thanks to everyone walking with me through this!!