Scars in the Sunlight

With Shelly Vaughn


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“Because You Loved Me”

I went in for my annual MRI scan on Monday and came out with good results and a sweet story!

If you haven’t had an MRI, know that the machine is a tube that you enter and have to stay still for the duration of the test. For my breast MRIs, I have to lay face down and enter the machine feet first, while my face is squished in a cushion and an IV is in my arm above my head. (My “boobs” are pulled down to hang through the table like udders- it’s ridiculous and weird.) It’s not comfortable at all- not that any position would be comfortable if you can’t move for 45-60 minutes.

The machine is also really loud- it clanks and bangs and is hard to describe. In order to take your mind off of things, and in a poor attempt to drown out the loud noises, the techs give you a set of headphones to listen to music during the test. And they always ask what kind of music you’d like to listen to. Every time I go, I request something different. Last time I asked for 80s, which ended up being more of 80s Rock than the Cyndi Lauper or Madonna that I was hoping for.

So this time, I asked for 90s hits. The day before, I had just hung out with some of my best friends from the 90s and the music from the decade always reminds me of the best times we had in middle school. When I decided to ask for 90s hits, I was really hoping for something upbeat and cheesy- maybe some Ace of Base or The Offspring.

As the machine started moving me backwards into the unknown, I heard the tech in my headphones say, ok, we’ll start your music now just be still.

The music turned on right in the middle of Celine Dion’s “Because You Loved Me.” No, this wasn’t the upbeat fun song I was hoping for… it was better. This was the song that my mom and I danced to at my wedding.

Thanks for being with me, mom. I love you.


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Spring Update

I think this has been the longest I’ve gone without posting an update. Sorry, everyone. That also means there are probably a lot of random things to talk about, but I’ll keep it as brief as possible.

Physically I’m doing really well. At the end of January, my surgeon stopped adding saline to my expanders because my skin won’t stretch anymore. So the size I am now is about the size I’ll be forever- a solid B! I’ll take it!

As planned, I have to stay at this point for 6 months then have one LAST surgery to replace the expanders with implants. So that surgery will be on July 19th. That’s just about 3 months away. I can hardly believe that I’m just 3 months away from the last step of this!

I’m gradually getting used to this body now. My chest and back are uncomfortable all of the time, but usually not painful. The hormone blocker that I have to take for at least 8 more years still causes joint pain, so I feel sore and stiff a lot. I’m trying to stay as active as possible to help with that.

In the last few weeks:

– I had a follow-up ultrasound to monitor the reactive lymph node under my armpit to reassure me (again for the 4th time) that it’s not malignant.

– My radiation oncologist officially discharged me from her care.

– My general surgeon said, “although you’re the highlight of my day, I don’t need to see you anymore”! (Since I have some attachment issues, I asked if I could come back in a year just so I can hear another person tell me I’m healthy.)

– The lymphedema on my right arm/hand is not too bad. The reconstructive surgery broke up some of the scar tissue that was impeding the lymph flow. So now it’s not nearly as swollen. Three of my fingers are large and my arm gets tight and uncomfortable sometimes, but nothing that a night of wearing my compression sleeve/glove can’t help.

Personally, life continues to be a constant mix of laughs, joy, frustration, peace and two pre-teen girls. Rob is busy training for the Akron marathon in September. The girls are busy with school, dance, and friends. We’re getting out to enjoy the nice weather. Work is going well but busier than I’m used to.

I’ve had a couple of sweet days with extended family that I’ll always remember (Toya Groves and Pat Smith- thanks to both of you for two special days.) I’ve also been spending some unexpected time with friends from home- time that is always cherished.

All in all- life is good. Some days the sun is shining and we feel the warmth on our skin. Some days it’s harder to feel it, but we know it’s there because we see the light. One of the greatest blessings we have is the light from the son.

Happy Spring.


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Never Be Alone

This date last year was my first chemo treatment. I’m so grateful to be on this side of it and be able to say that it’s over. But, man, that was the beginning of something so much harder than I anticipated.

As usual, this morning started out busy getting the girls off to school. I had a meeting and then had a chance to work with a boy who makes me smile and laugh for a full hour. Then as I had my first moment of reflective downtime, I noticed the sweetest text on my phone from my friend- which totally reminded me of how lucky I am to have such great friends; to have a God who has carried me through this; and to be here today to be able to reminisce. The timing of the text was perfect. Just like the timing of a phone call from my sister while I was having a little meltdown in the middle of the gym earlier this week. (I’m ok now, but those moments of feeling upset and not like “myself” still happen.)

This afternoon I was able to volunteer in Olivia’s classroom for her Valentine’s party. Again- it left me feeling so grateful to be able to be there and participate this year. And as I sit here reflecting on how this week went, I realize that’s pretty much the emotional roller coaster that is my life now. Mostly grateful, very sentimental, sometimes sad- and constantly reminded that I have never, and will never, be alone in this life- even when no one is around.


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My Tribe

Sunday mornings- they are amazing. And I don’t mean that I wake up rested and the kids get ready without hassle (those things would add to the amazement though). I mean that my soul gets renewed by going to our church building, seeing my friends, feeling loved by brothers and sisters there, learning from our minister, and worshipping our God who has done miraculous things in our lives. This morning, the day after reflecting on my long-term friendships, my mind couldn’t help but feel a deep sense of need to also acknowledge my “tribe” from church. There are a group of friends who are a huge part of my life and work “behind the scenes” to keep things on track- physically and spiritually. They have hearts bigger than most I’ve ever met. They allow me to be my true self and will pray harder than any other women I know. They inspire me to be a better version of myself. I feel safe with them- all.the.time. Since January, it has been a special thing to watch how they each respond to our needs- some are more prayerful and some are more practical, but they have shown me the love of Jesus so well. They really are His hands and feet. No doubt that they would hear the words “Well done, daughter” if they were to go to heaven today. As would so many of you who have helped. (I apologize if I haven’t been able to publicly thank everyone, but you all know who you are.) Even those of you who are vigilantly prayerful but from other parts of my life; or those who have shown love but may not be Christians… I still see your support as the hands and feet of Jesus even if you do not. So today’s Sunday morning amazement is intense gratitude for my tribe… my sisters… my church family. It’s beautiful to see how God has placed just the right people in my life.
(This picture was taken back in January shortly after my diagnosis. It includes many of the girls in my tribe, though not everyone. Girls, we do need to get together again soon and get a pic with everyone! 

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Big Trees

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One of the things we love about our house is that when we sit outside on the deck it feels like we’re at a campground. There are just the right amount of trees around to make us feel a little secluded, though the visible lights on at the neighbors’ homes so remind us that they are close. For a family who loves camping, but who also loves the feel of a sweet neighborhood, it’s perfect. The trees are one of my favorite things around here- and there are several different kinds. There are smaller ones that are more recently planted and more visible every day. There are four of them in our front yard that are part of our landscaping. We trim them back occasionally and notice them every day when we’re coming and going from the house. Our home would definitely not be the same without them and we love them. But there are also the bigger trees in the back of the house. They are tall and towering. Their roots are deep and sprawling. They are not as noticeable on a daily basis, but stand strong and firm every day. When it’s stormy and windy, that’s when we notice those ones more. That’s when they move and draw attention to themselves. Together, all of the trees are what makes our home comfortable to us, and exactly what we love.

A few weekends ago, I had the opportunity to spend a day with 4 of my closest friends… from middle school… over 25 years ago! We met each other when we were 11 years old and we became very close from the start. We have SO many memories of hanging out with each other. Many more people were added to the mix since that 6th grade year, but there is something special that is hard to define when you have the kind of history that we have. As with every friendship, our time together wavered as we went through high school, but the deep roots were planted firm enough that we could withstand everything. They are my “big trees” in life…. they have always been there- strong and steady. Sometimes unnoticed, but they stand out during the storm. They’ve been incredibly present and attentive during my storm this year. And I’m constantly reminded of how wonderfully they’ve held space with me when I’ve needed it.

During our time over that weekend, we looked through a LOT of pictures, had a ton of laughs, and I was so pleasantly reminded why I love these girls so much. I couldn’t help thinking that Olivia is almost to the age that I was when these friendships started. But things are so different for our own kids and the next generation. Our kids and their friends text and Facetime each other. They play the “words with friends” app instead of sitting at a table playing Scrabble. They are entertained by watching the same YouTube sensations at home and then talking about it the next day instead of sitting next to each other on the couch watching tv and taking bathroom breaks during commercials. But I will try my hardest to encourage my girls to disconnect from technology and be present with their friends during this preciously formative time in life. What young girl doesn’t remember the contagious giggles you get when you’re delirious- especially at sleepovers? You can’t “catch the giggles” through texting. 

I experienced such sweet memories during this recent weekend- the way Carly Caruso rubs her nose when she talks about things that concern her; Megan Nagel’s impeccably-timed humor; Trisha Brunazzi’s sarcastic tone in her voice; and Mindy Brisbane Vickers’ contagious laughter. Those beautiful nuances are noticed and treasured so deeply. And when Mindy jumped up to give me a hug the moment she saw my eyes starting to well up with tears while telling a story- that couldn’t even begin to be translated through technology if we hadn’t been together in that moment. I’m so thankful to be on the receiving end of love from this crew. Sharing physical space and such sweet memories with my friends since 25 years ago is the reason we still share meaningful emotional space now that we’re older. And reminds me that each of the memories of this experience through cancer- all of the meals, cards, time, messages, donations, and visits- are making the roots of relationships with all of you even deeper and stronger as well- strong enough to withstand any storm.
(Hopefully we’ll see more of those life-long friend at our 20 year reunion. Erin SearfossKaitlin McHughSteph ByhamMandy Daughenbaugh-Smith… and somehow you should be there too, Jessica Wypasek Gregory!)


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Thankful

When I got home from my last chemo treatment on Thursday, I was surprised to see my dad, my sister’s kids, and my 3 closest friends from PA all waiting in the front yard for me- with balloons and signs and arms waiting for hugs. We spent the evening hanging out- reminiscing, catching up, looking at old yearbooks. It was the kind of evening where you wish time would stop so the night would never end. It was lovely and unforgettable. Thankful for such amazing love and support!


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Thankful For Friends

Shout out to our amazing friend/neighbor/babysitter, Jessica Eckhart. She loves our girls so well and has always picked up where I slack in the area of arts and crafts. She has been tremendously helpful to us since January. And now that the weather has warmed up, she is also doing things like taking the girls to Brandywine Falls, the zoo, and other outdoor adventures. I love having friends that are able to do the things with my kids that I don’t have energy for these days.


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Thank You

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Today, I feel so loved and supported that it’s almost surreal. A group of amazing friends made these for me, and there are several more that didn’t fit in the picture. (Many of these girls were the same ones who planted the flowers at our house yesterday.) These words of encouragement and love will fill my soul every time I read them. I’m reminded that another blessing that comes through trials, is the realization that you’re surrounded by amazing friends every step of a difficult path. Thanks to everyone walking with me through this!!


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Lucky Girl

 

Today I feel like a lucky girl… and that’s not easily said in the middle of a cancer fight. I spent the morning at Olivia’s dance competition (she did great, by the way.) I came home to beautiful flowers planted by even more beautiful friends. Had a visit from my Aunt Pat and cousins. Then had a quiet evening with just Liana at home as Olivia stayed at her friend’s house. And you know what happened in the middle of it all- I ate a sandwich! A gourmet grilled cheese with artichokes from Lockview. For out-of-towners, Lockview is known for their amazing grilled cheese sandwiches. This is the best Saturday I’ve had in a while. I’ve had good moments on Saturdays, but this whole day felt good. I’m exhausted. But tonight, when I lay down for bed, I will close my eyes with a smile on my face.
“Inhale courage, exhale fear.” (Julie Nawrocky Reis)