Scars in the Sunlight

With Shelly Vaughn


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I wonder if they’ll know…

I wonder if they’ll know…

That they are the reason people call me brave. Without them, I would not have gotten out of bed sometimes. Getting them ready for school meant getting up and moving when I’d rather stay in bed. Taking care of them while at my lowest, meant living.

That finding people to help with them has brought me closer to certain friends and has given me the gift of watching others love on my kids. Hearing people offer to help take them places has meant seeing light shine brightly from others.

That everytime someone has sent them a gift or a card it has made my heart fuller than gifts for myself. The first cards that came in the mail for them, from other siblings whose mom had been through cancer, remain two of the most cherished pieces of paper in our home.

That watching them sleep brings a sense of peace that is indescribable- it has been that way since they were babies.

How their giggles strike a chord deep inside of me- more beautiful than all the music I could ever listen to. Hearing them laugh with each other brings its own special peace in my soul- as I know they’re growing a special bond as sisters that no one else in the world will be able to relate to. And they’ll have each other long after Rob and I aren’t here.

That my biggest fear has not been for me leaving them. It’s that they would have to go through the grief of losing their mom.

That I worry more about how they are getting through this than how I am.

That I’m beyond proud of their resilience and sweet souls as we navigate these waters without guidance. What to say? How much to share? How to calm their worries. What is normal now? Should I tell them I’m scared? Should I let them see my scars? What does this mean for their futures? What if? What if not? My worries for them go far beyond anything for myself.

That caring for them, raising them, has been such a beautiful gift- given to us and wholly appreciated- now more than ever. We’ve been graciously given the task of raising these two beautiful, sweet, hilarious, emotional, loving souls. But they are not ours… they are His. Our Creator who made us, who knows them, who holds them through me. I am so thankful that they were created in my womb. The most miraculous feelings this body has ever known was growing those two inside of it. Though my body feels like it’s failing me now, it certainly didn’t then. The breasts that have recently caused such sorrow did their job to feed those two. These hormones that “fed” cancer also did their part to create life a decade ago. And I can be nothing but grateful for that.  

You know, chemo didn’t just make me feel bad- it made me feel like a different person. My best identity change was when I became a mother to my girls. It was planned, welcomed, expected. This year my identity changed- unplanned, unwelcomed, unexpected- so much that I couldn’t recognize myself. I was no longer strong, healthy, happy, easy going. Physical changes forced me to be ok with a body I couldn’t control. Emotional changes forced me to feel differently than ever before. That was an intentional “ly”. My emotional responses and interactions with others were so unlike anything I was used to. And one of the most noticeable struggles was how hard it was to laugh. It’s just so hard to do when your body is not well. But you know the two people who could make me laugh no matter what- those two beauties I have the privilege of calling my daughters. They are precious souls who show love just as often as they fight with each other. Thank you to everyone holding space with me who have loved on them. And to those of you who haven’t met them yet- you’re missing out. I think they’re a couple of the best humans I know. Watch for them to change your world…. just like they’ve changed mine.

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Waiting

This whole experience in healing has been such a lesson in patience. And now has been no exception. I’m STILL waiting for radiation to start. On Aug 30th they said 7-10 days for my plan to be complete and treatment to start. I’ve called them at least once a week since then and they keep saying that my plan is not ready. So I wait. I don’t really want to start- mostly because I know it means I’ll be fatigued for so long. But I also want to start so that I can finish. This is the last of the big steps of treatment and I thought I’d be halfway done with it by now. 

With this unexpected extra time of feeling halfway decent, I’ve been doing some painting around the house- the trim, the wood paneling, and the mantle. It’s keeping me busy, but it’s rewarding. More importantly, it helps me feel like I’m not “wasting time” waiting for something out of my control.
I’ll keep you all posted…


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Grow through what you go through

Today, since I left work, I’ve been strangely hung up on the biological side of cancer and what my body just went through. And it really is crazy. So I thought I’d share a quick biology lesson on cancer (and Jessica Hartman may need to clarify if it’s wrong.)

Everyone has some cancer-ish cells in their body (there’s discrepancy about how to describe and label these cells). The cells need some kind of “trigger” to start dividing and become malignant. Many different factors can act as triggers- chemicals, environmental factors, dietary contributors, etc. And sometimes a person’s genetics dictates whether cells become malignant or not. Once “triggered”, the cancer cells no longer have normal checks and balances in place that control and limit cell division. So they grow out of control and rapidly divide. Chemo is treatment that kills all rapidly dividing cells in your body. So it kills those cancer cells, but also kills normal cells that are naturally rapidly dividing (blood cells; cells in the mouth, stomach, and bowel; and hair follicles). This is why chemo patients have low blood counts, mouth sores, nausea, diarrhea, and hair loss.

A little more info about my chemo drugs: Adriamycin is considered an “antitumor antibiotic”. It’s made from natural products produced by species of a soil fungus (I know… soil fungus?!?). Cytoxan is a drug that interferes with the duplication of DNA and the creation of RNA. And Taxol is a plant alkaloid- made from plants, specifically the bark of the Pacific Yew Tree. Then there are additional chemo drugs that other cancer patients use that are derived from the periwinkle plant, the May Apple plant, and the Asian “Happy Tree”.

So we have this unfair genetic predisposition (some of us), some cancer-potential cells already in our bodies, then an exposure to something that triggers them to multiply out of control. And the only way to stop it is to administer poison- made from plants with pleasant-sounding names like the Yew Tree and the “Happy tree” for goodness sake… can it be any more ironic?

I had something in my body that was growing out of control and could kill me- and I treated it with drugs that kill. It’s like a battle of which can be most deadly. And thankfully the one I was hoping for won out in my body. But the extent to which that needed to happen means that the rest of my body is still trying to recover- even 3 months after my last treatment. It’s a long process that I’m still trying to be patient with. It’s not easy; but after all that time of destruction on a cellular level, I’m thankful to be “building back up” again.

“Grow through what you go through.”


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Race With Grace

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Today I was able to participate in a 5K race for a wonderful organization. I walked it with the kids; and although I wish I could be in shape to run it, it was kind of nice to spend time walking the distance with loved ones. So representative of this experience for me- “walking the distance with loved ones”. 
We did have a few of the athletes on our team running the race- which were impressive. Way to go Rob VaughnAlicia HofmannSean DawsonLarry CaldwellMelanie WilliamsAdam Staller!
I’m exhausted tonight. But you know what- I’m exhausted because of a 5K! I used to be exhausted from walking upstairs. So things are looking up. And I’m super thankful that Keely A Smith-Jividen captured this special photo of me during the race. Looks like I’ve got some heavenly help shining down… ❤️


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A few random things:

I’m still waiting to hear from the radiation oncologist to set up my radiation schedule. I’m not looking forward to it, but I’m also anxious to get it over with.

I’m back to work full time; and so thankful that I work with amazing people who have made the transition as good as it can be.

This picture shows how happy I am to have my port out!! My arm is still just a little swollen and tender, but it’ll feel so good once it’s back to normal.

It’s been really nice outside so I’ve been soaking in the beautiful weather, knowing it won’t last much longer. If you’re reading this and it’s nice where you are- you should really get outside and enjoy it. Even just a walk around the block will be worth it. If you’re healthy enough to go do something- do it! 


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Deportation Day

“Deportation Day”- it happened today and the port is OUT! I’m so happy that it’s out… and that they let me keep it! If you look at the picture- the purple part was in my arm where they injected needles for every chemo treatment (and any other time I would’ve otherwise needed an IV.) The white part is the catheter that was thread through my vein- up and around my arm then the tip rested next to my heart. The numbness from the procedure is wearing off and my arm is pretty painful so I’m done for the night. Thanks for sharing in my excitement to get this out today. 

 


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No More Port!

Great news- I am getting my port taken out on Friday!! This Friday! Two days from now!! I’m so excited (if you can’t tell). I had an appointment scheduled for later in the month, but they called today to bump it up earlier. I know that treatment really isn’t done until radiation. But this port was so symbolic of the beginning of treatment… and the removal of it is symbolic that the end is near. That thing was my lifeline- I hate it and I love it all at once. I’m so glad to get it out of my body. OUT!! GONE!! Along with the cancer!
(Oh- and my return to work went well today. I had an appointment in the morning so it was a shorter day than usual. It was a nice way to ease back into things. And it was really great seeing my co-workers. Seeing them meant getting hugs from friends- which was actually really energizing and uplifting. I am thankful.)


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Healing and Work

I am continuing to heal well from surgery while doing PT to help with range of motion of my arm and lymphatic massage (to prevent lymphedema). This last weekend was especially pleasant because I was feeling well and we were able to get out and do some activities that felt “summer-y”- a day at Hale Farm, Stow Summer festival, and a picnic with friends. I love being able to enjoy times like these and so thankful for beautiful weather to do it. Tomorrow is a big day- I return to work after being off during this medical leave. I worked through chemo, so this shouldn’t seem too bad. But for some reason, I’m feeling nervous about it. I’m going back to do work that I love and be around people who are very supportive… it’s really the best case scenario. I guess I’m just nervous about the unknown- how will I feel by the end of the day? will I have the energy to do my job well? how will my radiation schedule fit into my work/home life schedule? I guess it’s the same as every step I’ve taken so far- I don’t know what it will look like, but I know I’ll be ok. But if you feel like saying a prayer tonight it would be appreciated.
Thanks, everyone.


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Grandma

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Here she is- the woman with a heart of gold who I love to look up to- my Grandma. I’ve mentioned her several times in these posts and I wanted those of you who didn’t know her to see what she looked like. But more importantly, to hear the story behind the picture this past week.

Monday was the Great American Eclipse. As with most science-related phenomenon, the Vaughns were fully prepared to witness it and experience it as a family. While sitting outside, staring at that golden sun (through our eclipse binoculars of course), I thought about my grandma. The golden hue of the sun is comparable to her heart in raising 12 kids and loving about a billion grandkids after that. She also frequently sang “You Are My Sunshine”… and all of us grandkids sang the song at her funeral.

In the middle of sitting outside Monday afternoon, one of the girls went to get the mail and there was a card from my Aunt Cindy in California. She wrote in the card “…wanted you to have this picture along with all my love and all of hers.” The same moment that I was thinking of this woman, I get a photo of her and me together with a message of her love. What a beautifully timed moment! Thank you God for that perfect timing. And thank you Aunt Cindy for sharing. Days like Monday are really cool!


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Deep Waters

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The girls went back to school today, starting 2nd and 4th grade this year. As the beginning of school marks the end of their summer break, I reflect back on what this summer has been like for them. I was so concerned that my issues would hinder their fun or make their memories of summer 2017 boring or miserable. Thanks to all of you who helped keep them entertained, and brought meals to us so that we could have more “down time” with them, I would say we collectively made their summer break pretty fun for them. It’s part of why I love this amazing group of people- not just holding space with me through this, but being part of the community/family keeping my girls playful and innocent.

There was one change with the girls this summer that I got to enjoy just recently. They have been to several big swimming pools this summer and had been telling me how well they can both swim now. It wasn’t until last week that I felt well enough to get out of the house with them and watch them swim at a friend’s house. They weren’t kidding. They’re swimming in deep water; jumping in without fear; and doing the handstands, flips, and underwater tea parties that every young girl should spend hours doing. It made me remember doing all of the same things with my sister, cousins, and friends every summer. It also made me think back to several years ago when we were members of Waterworks pool. The girls were both much younger and leery of the water. They would stand on the edge and hesitate to jump in the pool into my arms as I waited in the water. I knew they were safe no matter what, but they couldn’t feel it until they were actually in the water with arms around my neck and feet tucked around my waist feeling safe and secure again… and able to smile.

I can relate to that now in a different way. A cancer diagnosis suddenly threw me into water that I wasn’t ready for. It was so deep and frightening. My head barely stayed above the water at times and for a while I panicked- floundering around, reaching for anything around me to make me feel safe- just wishing I could be in a different place where my feet could safely touch the ground. But when I calmed enough, I could feel God’s arms right there. He was standing in the pool just waiting for me to realize He’s there to keep me safe in His embrace. To hold me in the deep water when I cannot stand on my own. So I feel Him now. I know He’s there. And I feel almost safe. Not enough that I’ve taken a breath and allowed myself to fully relax in His arms. (I don’t know when that will happen as I’ve heard from several survivors that the fear of recurrence is strong for a while.) But I feel like I’m getting so much closer to that now that I have the “all clear” from pathology. Honestly, I’d still like to be out of the pool watching from a chaise lounge as I sit poolside eating grapes in the warmth of summer. But you know what, I’m learning that I don’t get to choose where I want to be. But I can choose to trust that God’s got me no matter where I end up. 💕

“…You call me out upon the waters
The great unknown where feet may fail
And there I find You in the mystery
In oceans deep
My faith will stand
And I will call upon Your name
And keep my eyes above the waves
When oceans rise, my soul will rest in Your embrace
For I am Yours and You are mine…”
– Oceans (Hillsong United)